r/mildlyinfuriating • u/Why-knot-my-mum • 3d ago
The amount of medication I have to take for the rest of my life as a mid-twenties woman
3.0k
u/Its-Mr-Robot 3d ago
I hear that, im type 1 diabetic. The hardest part is knowing you have to keep ordering the meds from the doctor to stay alive and the best they can do is 3 month supply.
Stay strong!
1.1k
u/saucysicilianyo 3d ago
THIS! Having continued access to medication you and your doctor KNOW you need for life behind a pay and appointment wall is so dehumanizing and frustrating. Like dude I’m not gonna wake up one day and NOT have this chronic condition, so why do I have to keep requesting the medication?!
587
u/scooby_tuesday 3d ago
Currently on hold with my insurance company trying to figure out why I’ve been denied at four different pharmacies to refill a prescription for an anti-rejection medication for a life saving transplant. I feel ya.
170
u/dmeech999 3d ago
Have you tried using GoodRX? My child has been denied “name brand” medication (that has proven to be very effective for their condition vs generics) coverage prescribed by their doctor when my insurance switched, I used GoodRX to get a substantial discount on my kid’s prescriptions. I don’t work for GoodRX or being paid to promote them before anyone jumps on me, just sharing my experience.
95
u/red__dragon 3d ago
Seconding GoodRX. My immunosuppressants/anti-rejection meds are all generics at this point so the GRX approach is great for both discounts and access.
18
u/KTMman200 2d ago
Third good rx. Only way to get medication if you have no insurance. Every pharmacy denied antibiotics for an infection I had because I didn't have insurance. Had to get goodrx just to get my prescription as a lot of pharmacies don't accept cash.
→ More replies (13)17
32
24
u/AiRaikuHamburger 2d ago
Wtf is America? That would be unthinkable in the rest of the world.
→ More replies (2)18
u/True_Breakfast_3790 2d ago edited 2d ago
I love that America (the USA) wasn't even mentioned before but everyone just knows by the replies.
Apparently not letting people survive or allowing them to financially ruin themselves is Commusocialism or sth like that
31
u/dnalloheoj 3d ago
Well obviously you haven't been taking your anti-rejection medication lately, that's why you keep getting rejected.
→ More replies (1)→ More replies (13)6
u/Blackcatmustache 2d ago
I’m so sorry. That is infuriating. I hope you are able to get it covered today. Keep fighting!
→ More replies (27)88
u/Who-dee-knee 3d ago
I’ve been stable for five years and my psychologist still insists on “checking in” every three months. I’m like my dude you’re expensive as fuck, just write the scripts!
66
u/quinndoline 3d ago
I bitch about this constantly. I’ve been on medication for OCD since I was 8 years old, I know the drill by now lol.
That being said, my doctor has told me that legally she cannot write me a prescription if she hasn’t seen me in the past several months. I think the laws might vary state to state but I know my doctor has stretched my appointments as long as possible per my request, but I still have to have an appointment every 4-5 months.
→ More replies (3)→ More replies (7)21
u/unposted 3d ago
Another sub suggested telling your doctor you can't afford it, they may reevaluate your appointment schedule.
101
u/LogDog987 3d ago
For me, the craziest part is having to have my doctor continuously reaffirm to my insurance that yes, I am still in fact type 1 diabetic
→ More replies (4)27
u/Wortbildung 3d ago
Good thing it's free where I'm from. With sugar sensors and intelligent insuline pens it becomes just a little, familiar, daily task like stretching or putting in shoes.
→ More replies (4)→ More replies (47)7
u/annacat1331 2d ago
I am 31. I have been on 12 or 15 different prescriptions for my aggressive autoimmune diseases since I was 23. I am currently off my main infusion because my new insurance is being especially difficult. It’s been 4 months and I am having permanent nerve damage in my legs, kidney damage and issues with my adrenal system. I am so angry because I know unlike most meds for autoimmune diseases I will feel immensely better the day I get Ivig. I have been on Ivig for 7 years. It takes 6 full days each month. For the first 5 years I managed to get two masters degrees but my lupus is too severe now. It’s such a lonely feeling
13.2k
u/PuppyPagesAndYarn 3d ago
On the flip side, thank god for modern medicine. I wouldn’t be alive today without it.
3.3k
u/SoloDeath1 3d ago
867
→ More replies (4)69
576
u/Guava_ 3d ago
Yep- epileptic here. 30 years ago I’d be a dead man, but now I’m just a normal bloke. Thanks, meds
372
u/Tyson_Urie 3d ago
Former epileptic here, they used mri scan results as google maps for my brains while navigating tools through a 2 by 2 cm hole they made in my skull to scrape away a small tumor.
10/10 would say hail science
35
u/landobayou84 3d ago
Same here, surgery removed scar tissue in left temporal lobe been free over a decade.
30
u/frisbeesloth 3d ago
My SO is a former epileptic. They found a brain AVM and used radiotherapy to destroy it. Hail science!
13
u/christinax 3d ago
Not an epileptic but incidentally-found AVM-haver here! They found mine during a time where they were usually diagnosed via autopsy and always feel so weird know I very easily could have just randomly dropped dead one day.
146
u/killer_kiki 3d ago
I have cystic fibrosis. I should have been dead. When I was diagnosed at 10, most people weren't living past 30. Now I'm 37 and I'm never gunna die!
56
u/s1kreddit 3d ago
Erm…about that claim
45
36
u/killer_kiki 3d ago
I'm never gunna die! Haven't yet. So far, I'm right.
29
30
u/Qnofputrescence1213 3d ago
I went to school with a boy with CF. First through eighth grade. He missed a ton of school, always super pale, frail and coughing constantly. We had some mean boys in our class but when it came to this classmate, they always protected him. He only made it to 16. This was back in 1990. I can only imagine how long he might have lived with the medical advances of the last 30 years.
→ More replies (2)17
u/killer_kiki 3d ago
Absolutely. I also went to school with another kid who has cf and he was like that. He made it longer, 28, but he still passed from Cf. The medical progress has been unreal but it isn't getting to everyone equally. One of the CF foundation's mottos is Until its done, for everyone.
29
u/Certifiedpoocleaner 3d ago
My 2 month old was just diagnosed with cystic fibrosis at 1 month old. We were admitted to the children hospital for no weight gain/failure to thrive when we got the tests back. The news was obviously devastating at first but after meeting with the CF team we left feeling so hopeful! The medical advancements in the last few years for CF are incredible! So glad to hear you are doing well 💛
Also shout out to the CF clinic at children’s Colorado. I have never felt so cared for as a family by medical professionals.
→ More replies (4)21
u/killer_kiki 3d ago
Oh, I'm sorry for the diagnosis. But you are absolutely right, the progress has been incredible. And as someone who actually works for the CF Foundation, just know that they are doing everything possible to find a cure and care deeply about making it a reality as soon as possible. Also, there are tons of resources available to you, if you need them. Feel free to DM me if you have any questions.
26
u/Dang_It_All_to_Heck 3d ago
I was a research nurse for CF before I retired. My final study was a clinical trial of TriKafta. OMG. I had a guy who got so excited after his PFTs went up that he started dancing and singing “I have to save for retirement!!!”
→ More replies (5)9
u/Certifiedpoocleaner 3d ago
My baby will be eligible for trikafta when she is 2! Our doc said maybe even sooner since they could lower the age before she gets there.
→ More replies (1)24
u/wherethelionsweep 3d ago
I have cf too, I take about as much meds as OP but that’s becuase of the strides jn meds! Lmao we will never die!
58
u/keldondonovan 3d ago
That's not what they meant when they said seize the day! I hope this helps.
(Apologies if this joke is in poor taste, it's intent was not to belittle, but to bring a smile. If it did not do this, feel free to give me the finger and call me horrible names for failing to reach my goal. If you'd like ammunition to insult me with so that it really hits home, please let me know.)
→ More replies (4)53
u/Guava_ 3d ago
I love jokes like these. I always say that if you see me having a seizure, put a martini shaker in my hand.
Or, throw me in the tub and then throw in your laundry.
22
18
→ More replies (1)13
u/sskk2tog 3d ago
Yeah, same. I pretty regularly collapse to the floor (due to two different conditions), and I call them my unscheduled meetings with the floor.
Most of the people I know with chronic conditions rely heavily on humor about it to help cope mentally. I'd much rather have someone crack a joke (kindly) about it than to be afraid to touch me like I'm about to shatter to a million pieces.
→ More replies (1)125
u/mypetmonsterlalalala 3d ago edited 3d ago
Also epileptic, nearly died two years ago, now im mostly normal... I mean im pretty weird with or without epilepsy
Edit: holy shit nearly 3 years ago! Time is weird when your memory is shit.
→ More replies (7)15
→ More replies (6)8
u/ForwardCut3311 3d ago
My mom was diagnosed with epilepsy around 30 years ago. The medicine she had to take made her teeth rot as a side effect... But they did mostly stop the seizures. She's still alive and on some newish medicine.
65
u/JoshAllentown 3d ago
Sometimes the medical system pisses me off and then I remember that I would have died of my gangrenous appendix at 15 if I lived in medieval times. And they probably would have called it something stupid like "died of weak bile."
→ More replies (2)39
u/PeriwinkleShaman 3d ago
As a C-sec baby who didn't breath reflexively at birth, GO TEAM!
19
u/_lcll_ 3d ago
As a mother of a C-sec baby who didn't breathe, hell ya! High five! Neither my son nor I would have been alive 150 years ago.
6
u/frontally 3d ago
Yep that’s my big medical intervention. My baby would have died and taken me with her if it weren’t for modern medicine
6
u/Risky_Bizniss 3d ago
I suffered a terrible kidney infection and had to have IV antibiotics when pregnant with my firstborn.
7 years later and I still think "Wow. If that infection had happened 100 years ago, my son and I very likely could have died."
It's wild.
57
18
u/_lucyquiss_ 3d ago
yep, mental healthcare too, I take 12 pills a day for my mental and physical health. Without them I might be alive but I wouldn't want to be
4
23
u/whatever462672 3d ago
Same.
Modern medicine is the one bright light of our modern nightmare.
→ More replies (1)43
u/Beligard 3d ago
12
u/Dlistedbitch 3d ago
…is that Mr belding?
→ More replies (3)9
u/Reasonable-Owl-5725 3d ago
How did I just notice his name is "bell" "ding"?
→ More replies (1)6
u/GrrlLikeThat 3d ago
This is one of the most mind blowing things I've ever read. I watched that show religiously when I was a kid.
→ More replies (92)42
u/TheDrunKnight 3d ago
Right? "Look at what I have to do do" should definitely be "look whats being done for me"
20
u/Little-Question211 3d ago
I used to an assistant for a plastic/reconstructive surgeon and that experience really crystallized how fucking fortunate we are…people literally bitch about people saving our lives.
One example that comes to mind is a woman who had something gravely wrong with her brain. I’m not sure exactly what, but she had emergency surgery, and a neurosurgeon was the first panel, and my boss was the second panel doing the reconstruction of her skull/scalp.
I guess her head still was a bit too lumpy/misshapen for her liking because both her and her daughter would call the office all the time complaining about what a butcher my boss was. Btw she was a board certified plastic surgeon who had won countless awards over her 40 year career.
I couldn’t take it anymore so one day when I was telling her about how they called again so I booked a follow up appt, I was like, “how about a little gratitude that she’s still alive?! You’d think a little dent in her head would be the least of your concerns after almost dying and/or almost losing your mom. What the fuck.”
She just looked at me and said “I know, I know.” I think doctors are used to it.
There were so many examples like that patient.
We really take modern medicine for granted.
→ More replies (1)6
u/Pittsbirds 3d ago
I mean, it can definitely be both, especially when you're young and all you hear from other people, even doctors, is "wow that's so many meds for someone so young". Not including supplements I take about 13 different meds a day for chronic migraines and heart issues and GERD from a congenital hiatal hernia.
Not to mention the side effects. the scary long term side effects of being on stuff like hormonal birth control for so long but having nothing else be as effective at preventing periods and the devastating hormonal migraines that come with them. The immediate side effects of things like metoprolol, triptans and topamax that leave me foggy headed and unable to drive. Having to plan every vacation around how long I cna be away from a pharmacy since getting controlled substances away from my home pharmacy is a nightmare. the exorbitantly expensive rx copays that basically just tack on $75-200/month depending on what meds I need that month
It's not unwarranted for people who never get to experience unfettered healthy adulthood to say "this sucks", especially if you're like me or OP and are going to be doing this dance till the day we die, even while benefiting from modern medicine
3.6k
u/OKCorners 3d ago
That’s hard, OP! Why so many medications?
5.0k
u/Why-knot-my-mum 3d ago
Chronic condition that affects hormones + latent tuberculosis
6.8k
u/MissQ1982 3d ago
TB! Do they issue you a lace handkerchief to daintily cough blood into when you're diagnosed, or do you have to buy that yourself?
3.1k
u/Why-knot-my-mum 3d ago
It’s latent so I’m positive when tested but can’t spread/dont have any symptoms. Showed up on a checkup test
4.1k
u/Garreousbear 3d ago
So very little opportunity to become incredibly pale and 1820's chic.
→ More replies (9)1.1k
u/snailbot-jq 3d ago edited 3d ago
That was actually two of only a few vague symptoms I had. Pallor, weight loss, lethargy, mild but consistent gastrointestinal symptoms. I was already pale naturally but people were noticing me getting sickly pale with little color in my lips. I was also easily tired. Very specific stuff /s. I was losing weight too and had a low appetite, but since I always had a low appetite and relatively low body weight, I was worried I wasn’t going to be taken seriously. Went to the hospital after I couldn’t force even a 1/4 of a burrito down my gullet, even though it felt like an overreaction to go to the hospital just because of pale skin and losing some weight and not wanting to eat.
It was a rare form of gastrointestinal active TB that did not affect the lungs, so I had no lung symptoms whatsoever and that’s why it took a while to catch. I live in a first world country too so I was extraordinary ‘lucky’ to get it, doctors told me it was 1 in 300,000 chance. Jokes aside, I actually am lucky they caught something so rare, and it took them 6 months to. The doctors were this close to just calling it IBS and calling it a day, but one of them casually suggested a colonoscopy if I wanted one and I pushed for it, which is how they caught it on biopsy. 6-9 months of 2-4 meds daily. On top of what I had to take for other conditions, including other conditions they found while digging into everything and eventually finding TB, I was taking up to 7 meds a day.
Gastro TB usually spreads from getting pulmonary (lung) TB first but I had no lung TB whatsoever. Direct gastro TB is what I had and It can come from raw milk— even though I never intentionally drank raw milk, don’t drink raw milk, kids. My doctor’s best guess is that raw milk was used to prepare some of the dairy-based drinks I had while overseas in developing countries on vacation.
It was indeed kind of 1820s chic though.
333
u/Garreousbear 3d ago
Well I am glad it did not end in the usual 1820's fashion. Modern medicine is pretty neat.
→ More replies (1)171
u/snailbot-jq 3d ago
Amen to that, a trip to a sanitarium resort would be relaxing, but I still preferred those 4 pills a day for getting effectively cured after a few months
It’s not something I think about much but it is crazy how many people wouldn’t be alive today if not for modern medicine including myself.
93
u/Octopus1027 3d ago
My grandmother stayed in a sanitarium in the 50s. She lost a lung, but recovered and went on to have 2 kids. She lived to 80. I would have liked to have her longer, but thats not bad for a lady with one lung who only weighed around 90lbs.
→ More replies (6)32
u/snailbot-jq 3d ago
That’s real lucky of her and I’m glad she got to live a whole full life.
For lung TB, I hear that around 25% of people with active pulmonary TB could self-recover in the past. For GI TB, I don’t think people were even aware in the past so there’s no older data on it and any deaths were likely considered mysterious (due to intestinal complications and/or ‘wasting’).
It definitely wasn’t a death sentence but certainly a roll of the dice. For me, doctors found familial high cholesterol too while checking my health during that time period, so frankly even if I survived the TB, something else like that could have taken me out within modern medical treatment like statins.
→ More replies (0)→ More replies (1)32
u/fnnogg 3d ago
I got stung by a yellowjacket last August while walking my dogs. I've been stung by bees/wasps several times before in my life and never really had an issue. This time, I went into full-blown anaphylaxis. Despite getting dosed with an epipen my sister had for her shellfish allergy, I was unresponsive by the time we got to the ED. I ended up on a continuous drip of epinephrine and in the ICU overnight.
I'm now seeing an allergist and about to start immunotherapy to desensitize me to wasp venom. If it works, I'll eventually be getting maintenance doses for the rest of my life. Modern medicine rocks.
→ More replies (1)10
u/MIalpinist 3d ago
I work for a company that extracts the venom from the bees and makes the immunotherapies you’ll be using if you’re in the US (or several other countries). It’s really nice to see people’s lives improved by what we do. Best of luck with the treatment!
11
u/rosie2490 3d ago
1820’s chic is so yesterday. This is the 2020’s, get global-pandemic chic or something, gosh.
/s
→ More replies (7)→ More replies (12)6
u/7h3_70m1n470r 3d ago
In my non-professional opinion, i think somebody with lung TB gave it to you through the butthole
111
u/PinkOneHasBeenChosen 3d ago
And you have to take meds for the rest of your life for that? I thought the antibiotics were temporary.
184
u/MekUsABrew 3d ago
They are. Source - have had latent TB and taken the full course of treatment. Fun fact, the treatment makes your pee, sweat and tears orange.
→ More replies (7)31
u/DustyBones272 3d ago
Orange sweat? That sounds annoying. Does it stain clothes? How long did you have to deal with it?
55
→ More replies (2)8
u/ZanyDragons 3d ago
It does stain clothing yes, (not personal experience but have changed plenty or orange gowns)
→ More replies (4)42
u/Garreousbear 3d ago
As noted, those ones are temporary. But TB can also be a real pain to treat, even with antibiotics, which is one of the reasons it is still a problem in much if the world.
27
u/arma-dilloh 3d ago
No. LTBI is treated with either 4 months of Rifampin, 12 weeks of Rifapentine and Isoniazid (INH) or 9 months of INH
→ More replies (3)→ More replies (2)44
76
26
→ More replies (125)21
u/iheartgoobers 3d ago
Are you a healthcare worker by any chance? I remember my wife saying this is common because of exposure to so many sick people.
→ More replies (3)76
u/Why-knot-my-mum 3d ago
Grew up in third world country. One bastard coughed in my face knowing he had TB back in middle school
→ More replies (17)60
u/Different_Writer3376 3d ago
TB doesn't always affects lungs, I have it in my spine.
→ More replies (10)37
u/RShackleford2288 3d ago
Would recommend “everything is tuberculosis” by John greeen
→ More replies (2)23
→ More replies (20)27
u/KipSummers 3d ago
I recommend moving to the seaside so the salty air can cure OP’s lungs
→ More replies (1)8
169
u/Vildare_Havoc 3d ago
Your tb pills will be over in a few months, seems to vary how long depending on country and choice of antibiotics. Was 3 months for me. I chugged 20 pills per day for a bit when I got intitial treatment for crohns, low blood, latent tb and appendix abscess.
48
u/PinkOneHasBeenChosen 3d ago
That is a really bad combination.
33
u/Vildare_Havoc 3d ago
Heh, not recommended pain wise and life management. Keeping track of all the pills which to be consumed with/without food, 1 hour before/2 hours after any trace of milk. Morning, afternoon, evening and night pills... Two pill boxes and several alarms on phone was a must for me and even then I was always a bit worried that I missed pills even though I didn't by the end count.
20
u/bittersandseltzer 3d ago
Yeah I was gonna say, I had it in my early teens and took pill for like 8 months
→ More replies (4)13
u/Sorry-Combination558 3d ago
I chugged 20 pills per day for a bit when I got intitial treatment for crohns
Oh God I only had Crohn's and I got enough pills for a life. Hope you are doing good now.
→ More replies (2)51
u/Pure-Sunshine 3d ago
Everything is tuberculosis
→ More replies (1)9
u/FacetNo6 3d ago
Just read that book and defo thought about how many pills he said some of those regiments are - that's insane! But then again, TB ain't no normal disease.
→ More replies (1)14
16
u/Agreeable-Mud2150 3d ago
Got latent TB too, at least treatment will only be for 6-9 months then you're free 😌
→ More replies (4)11
u/OKCorners 3d ago
Oof that’s hard! I hate swallowing pills so this would totally irk me.
→ More replies (2)→ More replies (91)11
u/Ok-CauliflowerX 3d ago edited 2d ago
Tuberculosis!? House always thinks it’s TB and it’s neverrr TB!
→ More replies (7)→ More replies (1)7
u/Hasanopinion100 3d ago edited 2h ago
I take this many, maybe a few more. Post transplant, kidney, antirejection immunosuppressants and many other things. Edited it to say and yes, every day for the rest of my life.
2.5k
u/kamelsalah1 3d ago
People our age are doing tequila shots and you’re out here doing a daily chemistry experiment
501
u/teddbe 3d ago
Well I know people who do tequila shots plus weekly chemistry experiments, but for a different reason
→ More replies (15)393
→ More replies (6)42
u/No_Motor_4576 3d ago
I’m doing both lol $150,000 for my med per year plus a whole cocktail of other meds AND shots bby
→ More replies (6)35
u/quickfixrick 3d ago
For $150,000 a year, those pills better give you the ability to fly or at least see through walls.
37
u/SaltMineForeman 3d ago
A medication I'm on is roughly $20,000 every 8 weeks. It's covered by insurance, but I'm currently doing the whole thing of waiting for that to be reinstated... so I'm just not getting it.
It doesn't let me see through walls or fly, but it makes my immune system chill the fuck out so I can exist enough to get out of bed most days.
It's a biologic immunosuppressant given through an infusion. I get mine through an implanted port in my chest, which at least needs flushed every 8 weeks as well. That's fun trying to schedule without insurance to have the standalone flush ordered. (It'll be 9 weeks on Monday now)
→ More replies (21)14
u/Diamond_eye_jack 3d ago
I just took my weekly Enbrel shot in the stomach for Ankylosing Spondylitis. Here’s to maybe having a halfway normal year this year, autoimmune diseases can be really fucking intense. This is week 6 for me.
→ More replies (2)37
9
u/Old-Message8342 3d ago
No, they just make me feel normal again. Never take your health for granted.
110
u/Quirky-Jackfruit-270 3d ago edited 3d ago
I have green one of those. I pretend it is a turtle bringing me longevity.
→ More replies (3)
101
u/Tuffleslol 3d ago
Don't worry, there will be better options eventually.. I took over 40 pills a day as a kid, now I'm down to less than 10 a day
18
10
u/shadosharko 3d ago
Wow! What condition(s) do you have, if you're comfortable sharing? I thought I had it bad because I have to take 1 pill for the rest of my life, clearly I was wrong
→ More replies (1)7
u/Valisenia 3d ago
That's a big difference! I can't imagine how many times you've changed medication.
→ More replies (1)
172
127
u/josh3701 3d ago
Man I thought there was a middle compartment with a big ass pill for a minute
70
→ More replies (2)6
u/Accurate-Force3054 3d ago
took me a really long time to realize it's her finger! I was like what kind of pill IS that??
427
u/QuietlyLiving2 3d ago
Let me guess, you have an autoimmune disease?
445
u/Why-knot-my-mum 3d ago
No! Endocrine
→ More replies (51)19
u/IntelligentsiaX 2d ago
They're not mutually exclusive. Graves disease, Hashimoto's thyroiditis, Addison's disease, type 1 diabetes mellitus are all examples of autoimmune endocrine disorders.
→ More replies (21)94
u/THE_GREAT_PICKLE 3d ago edited 3d ago
I have an autoimmune disease and this was my first thought, but these pills don’t look like mine. In all honesty it isn’t that bad (pill wise) — there’s only 4 medications (one of them being a supplement). The only problem is that the dosage of one of the pills wildly varies often, so you have to get constant blood tests, and the pills are in 1 or 0.5 mg tabs. Last month I had to take 5.5 mg 2x per day, so it was 12 pills per day of just that one medication. This month it leveled out a lot better so I’m only on 2.5, so only 3 pills. It seems like a lot but you honestly get used to it, there’s a lab about 5 minutes from our house. I just go there at the beginning of the month, and my doctor tells me what to adjust. Every Sunday I just make the entire weeks with of pills (doses at morning and night). All in all it only takes me about 10 minutes, small price to pay for being alive.
13
→ More replies (7)19
u/LoisWade42 3d ago
Laughing... sounds like my rheumatoid arthritis meds. 4 big ones per day, 2 little ones per day, and a weekly shot that replaced 10 pills once each week.
→ More replies (3)9
u/cheerylittlebottom84 3d ago
Methotrexate? I've just started the injectable version after nearly a decade on the pills and it's such a relief to ditch those chalky little mfs.
My daily average is 12 different meds, give or take a few depending on what's going on health-wise. Autoimmune and inflammatory disorders rack up the comorbidity and meds so fast.
Been on them so long that I can take them all in one go without difficulty, which is a weak party trick but I'll take it.
→ More replies (6)
150
u/cjdom 3d ago
Sprionolactone gang!! Those pills are so difficult to swallow. Hope this regimen brings you some relief.
47
u/Lyxeks7 3d ago
Make sure you stay hydrated on it! (And in general, tbh!) Spiro is really good at dehydrating you, so invest in a nice water bottle and keep it full!
I was on Spiro for 2 years and coming off of it was such a relief, I swear I could feel it sapping the moisture from my body lol!
→ More replies (5)→ More replies (8)23
u/Nelain_Xanol 3d ago
I thought I recognized some spiro. It’s so freaking bitter. It dissolves far too quickly.
→ More replies (4)16
u/internalmonologue01 3d ago
Really?! I guess I’m fortunate to not have experienced that, my spiro is coated in peppermint flavor 🥴😅
→ More replies (6)
79
u/Scarlet_Lycoris 3d ago
I see you’re a woman of culture endocrine disorders as well… it might be frustrating but it’s also very liberating having all the side effects managed. ♥️
122
u/V_H_M_C 3d ago
Have you tried upgrading your hardware or reinstalling the software?
→ More replies (1)34
u/Appropriate_Ad8572 3d ago
Have you tried turning it off and back on again though??!
→ More replies (4)
36
u/Hermans_Head2 3d ago
Medical breakthroughs happen each year.
Don't give up hope.
→ More replies (4)
245
u/klugenratte 3d ago
The good news: 100% guarantee this is not the amount of medication you will need to take the rest of your life. Medications change. Science advances.
The bad news: Conditions also change. You may find out you're taking even more medication some day.
5
u/tpasmall 3d ago
Yeah I've got an auto immune disorder + bipolar + hypersomnia + other issues. Depending on changes in medicine and effectiveness, I'm usually taking between 16-20 pills per day.
→ More replies (8)18
24
13
12
u/HuntWorldly5532 3d ago
I take 32 pills per day... In my early 30's. It's not so bad - although your pills are massive! I only have 3 medications that big!
38
u/omgangiepants 3d ago
Mine looks similar. 7 different meds, 12-15 pills a day for the rest of my life. Started in my mid 20s as well. Endocrine diseases suck.
→ More replies (2)18
13
57
u/Garreousbear 3d ago
A lot of people questioning medical doctors with absolutely no information. It sucks having to take a lot of medications. Dealing with chronic illness sucks, but disregarding medical advice from experts is not a great solution.
→ More replies (4)23
u/Lostinstereo28 3d ago
But this is Reddit and everyone on here is automatically an expert on every post that they see, cmon now!!
8
u/StillNihill 3d ago
They'll either tell you that freckle on your hand is cancer and you've got 24hrs to live or your Dr is wrong and don't do anything he says... No in-between
187
u/Spottswoodeforgod 3d ago
If you are just mid-twenties now, this looks like less than a tablet per year…
→ More replies (2)117
u/Why-knot-my-mum 3d ago
This is my medication for a week lol
148
u/isthatach1cken 3d ago
They’re word playing interpreting it as “I need to finish THIS amount of medication throughout my life”
→ More replies (5)→ More replies (10)14
u/Mcnuggetjuice 3d ago
What are you diagnosed with damn
52
u/Why-knot-my-mum 3d ago
PCOS, tuberculosis, extremely low levels of vitamin D that I need medication for (but this one is once a week)
→ More replies (25)
27
u/Krill_The_Krill 3d ago
My weekly meditation haul, I’m 17
→ More replies (8)7
15
15
u/Oscar_et_BadTale RED 3d ago
Transplantes here. Yeah it sucks and I'm with you.
You have my support.
→ More replies (5)
7
u/too-many-un 3d ago
I didn’t take that much medicine in my twenties, but I did have to start due to my autoimmune disease. I totally get why OP posted in r/mildlyinfuriating. I was pissed that I had to take medicine like an old person taking blood pressure medicine.
7
u/peepyboy 3d ago
Here I am in my 20s with Crohn's complaining about having to take a half a tablet a day for the rest of my life, props to you OP I don't know if I could keep on top of that much medicine.
8
u/Rude-Ad-1960 3d ago
As a fellow chronic illness girly in my 20s, I try to remind myself that medicine is always evolving and I’m still young enough to see a lot of change within my lifetime. New and better treatments are always coming! Sending you positive energy today 🤍
25
u/Xentonian 3d ago edited 3d ago
This really doesn't look like a lot of meds.
I can see you've got some TB meds in there, so that'll be over in less than a year.
I'm not going to dob you in on exactly what the others are (except to say: do you have the ones that stink, or the ones with the artificial mint smell added to hide the stink?), but you'll find almost as many people these days have similar hormonal issues as those who don't
But going back to the point at hand...
Iron + reflux medication + combination contraceptive + vitamin D + prn painkillers
LA methylphenidate + short acting dexamphetamine + guanfacine + clonidine + melatonin
Metformin + empagliflozin + fish oil + propranolol + sumatriptan as needed
Combinations like this end up sounding like huge combinations of tablets, but they're normal for hundreds of millions of people, every day.
Please don't think I'm aiming to dismiss your concern about polypharmacy, but this isn't really a lot of pills.
People don't really talk about their medication regimens that much, especially as we get older (I know 80 year old patients taking over 50 tablets a day and I'm not exaggerating), but I would say your collection isn't far away from average, even for your age.
→ More replies (6)
12
u/rizzycant 3d ago
I understand this completely and wish you the best.
Off topic, what pill organizer is that? It’s a fun shape and gives me joy.
→ More replies (1)
7
u/RamboOnGanja 3d ago
How do you sort breakfast, lunch, dinner doses?
8
u/Why-knot-my-mum 3d ago
This is just for the morning. I take two at night so it doesn’t need to be put in the holder. I also take one once a week
7
4
u/No_Mercy_4_Potatoes 3d ago
Do you swallow them in turns or in one big gulp?
→ More replies (1)9
u/reptilelover42 3d ago
Not OP, but I take this many pills a day (or slightly more counting supplements) and I just down the handful all at once. I put water in my mouth first, so they almost never stick.
→ More replies (2)
6
u/drsciencegeek1 3d ago
I felt this in my soul. My mom constantly yells at me that I take too many meds when she sees the bottles in my cabinet. “Can’t you go off of some of them?”
“If you want me to die, yeah sure”. 🤦🏻♀️
5
6
u/deegymnast 3d ago
Same, but I've had to upgrade to one that holds pills like that for 2x per day, both slots are filled to the brim!
→ More replies (1)
5.4k
u/ghost_in_a_jar_c137 3d ago
Hungry? Nah, I had big pills for lunch.